The statistics are staggering. Between 500,000 to 900,000 children are born with Beta Thalassemia in Pakistan each year, a significant portion of whom are unable to afford even the most basic medical care.
In the heart of Pakistan, where poverty intertwines with the silent killer known as Beta Thalassemia, a glimmer of hope emerges through the tireless efforts of Thalassemia Relief.
Founded by Adam Khan, this organisation is more than just a charity; it’s a lifeline for those battling this devastating genetic blood disorder.
Adam Khan’s journey with Thalassemia Relief began from a deeply personal place.
Having witnessed firsthand the plight of underprivileged children suffering from Beta Thalassemia, Adam was driven by a simple yet profound belief: medical support should be a fundamental right, not a luxury.
With this conviction, he embarked on a mission to ensure that every child, regardless of their socio-economic background, had access to life-saving treatment.
The statistics are staggering. Between 500,000 to 900,000 children are born with Beta Thalassemia in Pakistan each year, a significant portion of whom are unable to afford even the most basic medical care.
The Amna Jahangheer Thalassemia Centre in Kotli, Pakistan, became the focal point of Thalassemia Relief’s efforts. Here, the team could address the pressing needs of patients and work towards their ultimate goal of saving lives.
Thalassemia Relief operates with transparency and accountability, adhering to regulations set forth by the Charity Commission, Fundraising Regulator, Gift Aid, and HMRC.
Beta Thalassemia Major looms large as a leading cause of mortality in specific regions of Pakistan. Recognising this grim reality, Adam Khan and his team at Thalassemia Relief set out to raise awareness and mobilise resources to support the most vulnerable members of society.
How it all began
The journey began modestly, with Adam and a dedicated volunteer, Bilal Hasan, leading the charge.
Through grassroots efforts and community outreach, they laid the foundation for what would become a beacon of hope for countless families. As the organisation grew, so did its impact.
Adam says: “Today, Thalassemia Relief boasts over 50 patients receiving essential long-term blood transfusions and iron chelation medicines, thanks to the generosity of donors.
“But the work is far from over.
“Thalassemia Relief provides a comprehensive range of services, including blood transfusions, tests, medication, food, transport, medical equipment, specialist ppointments, and crucial awareness programs. Every donation, no matter how big or small, directly contributes to these vital initiatives.”
Registered with the Charity Commission and Fundraising Regulator, Thalassemia Relief operates with a 98.9% donation policy, ensuring that your contributions go directly towards supporting those in need. They are supported by the UK NHS Beta Thalassemia Genetic Counselor, Sobia Khan.
What’s next?
Looking to the future, Thalassemia Relief envisions expanding its reach beyond Kotli, Pakistan, to other regions where poverty and lack of access to healthcare exacerbate the suffering of those with Beta Thalassemia.
Adam says: “With your continued support, this vision can become a reality.
“At Thalassemia Relief, the mission is clear: to provide free, comprehensive care to patients battling Beta Thalassemia while addressing the broader issues of poverty and inequality.
“Through a combination of medical treatment, education, and community empowerment, they strive to create a brighter, healthier future for all.”
Back in December 2021, Thalassemia Relief began as a humble appeal, driven by a sense of urgency and compassion. By June 2022, it was officially registered, marking the beginning of a remarkable journey towards healing and hope.
Since then, Thalassemia Relief has treated over 300 patients, extending its reach to over 10 different parts of the country, including remote villages where access to healthcare is limited.
Awareness has been at the forefront of Thalassemia Relief’s efforts from the very beginning.
Through various methods such as door-to-door campaigns, private fundraisers, and fund days, the organisation has sought to educate communities about Beta Thalassemia and the importance of early detection and treatment. These grassroots initiatives have played a crucial role in saving lives and preventing needless suffering.
Thalassemia Relief operates with transparency and accountability, adhering to regulations set forth by the Charity Commission, Fundraising Regulator, Gift Aid, and HMRC.
Supported by NHS Thalassemia Genetic CLLRS, the organisation is committed to providing gold standard, long-term care to its registered patients, covering a wide range of services from blood examinations to iron chelation therapies.
The Amna Jahangheer Thalassemia Centre in Kotli, Azaad Kashmir, serves as the primary hub for Thalassemia Relief’s operations, providing essential care to 178 long-term registered children patients.
However, the demand for their services continues to grow, with 25 patients awaiting registration. With your donations, Thalassemia Relief can extend its reach and support even more individuals in need.
Providing support
In addition to providing medical care, Thalassemia Relief is committed to creating a supportive and nurturing environment for its patients. Last year, they invested in cosmetic renovations at the centre, transforming it into a child-friendly space filled with colourful cartoons and paintings.
“These small gestures make a big difference in the lives of children battling Beta Thalassemia,” Adam adds.
“The achievements of Thalassemia Relief are a testament to the dedication and hard work of its team members and volunteers.”
From receiving awards for their impactful work to halving excess iron levels and reducing the need for blood transfusions, the organisation has made significant strides in improving the quality of life for those affected by Beta Thalassemia.
But Thalassemia Relief cannot do it alone. They need the support of long-term donors, business leaders, and compassionate individuals like you to continue their life-saving work. Whether it’s through local collections, pledges, or spreading awareness in your community, every contribution makes a difference.
“Looking ahead, Thalassemia Relief’s goals are ambitious yet achievable. They aim to register more patients, support additional centres, and expand regionally, ensuring that no child suffers needlessly from Beta Thalassemia,” says Adam.
“With your continued support, they can turn these aspirations into reality and create a brighter future for generations to come.
“In conclusion, Thalassemia Relief is not just an organisation; it’s a beacon of hope for those battling Beta Thalassemia in Pakistan and beyond. Together, let’s stand with them in their fight against this silent epidemic and make a difference in the lives of those who need it most.”
For more information on how you can support Thalassemia Relief or to volunteer your time, visit their website at www.thalassemiarelief.org or contact them directly at info@thalassemiarelief.org or 01274 009575. Follow their journey on social media and show your support for this worthy cause.
